May is the month to stretch your wings and reach out to those who may not understand that life is so very precious. Some may not understand that one moment can change a life forever. Some may think that waiting to use a medication will not make a difference. Some may not know that everywhere, people are dying because the proper knowledge was not given to them. Each of us is different and each of us finds a way to reach out with our own voice. Making your allergy voice heard can be anything- a tweet, an article, attending an event or even distributing information that will help others understand the importance of being vigilant for safety's sake. There is no such thing as too large or too small- the important thing is to find a way and do it.
This May, I was invited to attend the Asthma Bloggers Summit hosted by the Allergy & Asthma Network. This summit was an amazing day that compiled food allergy and asthma bloggers mixed with representatives from AstraZeneca, The Chest Foundation, Regeneron, Sanofi and Allergy & Asthma Network (of course). With a laid back discussion, the day included the introduction of new resources available through the Allergy & Asthma Network, a Q&A on social media pointers but more importantly our thoughts, opinions and personal accounts were included in the discussions. I felt that capturing each person's different experiences makes for a well-rounded, upfront discussion and brainstorming session that fuels nothing but the overwhelming need to help even more. Don't get me wrong, it's ok to be told things but when you are asked light bulbs go off, people begin to scribble and you can feel the increased advocacy in the room. Sharing within a no judgment zone is an amazing feeling. The empowerment that was held inside that room is an incredible energy that sent me back home pumped up and full of I can conquer the world ambition.
I Mentioned New Resources I am all about sharing new resources- the more we have at our fingertips, the more all of us can learn from each other and teach others. The Allergy & Asthma Network brought us up to speed about three great places that we can go to for asthma.
- Asthma: Take Action. Take Control A partnership with The Chest Foundation, this site shares info graphs, patient testimonials, an asthma control quiz, asthma severity assessment tool, downloadable fact sheets and a postcard size info card that you can share with others.
- Be the Boss of Your Asthma If you ever needed to know or share facts about your asthma, this is another place to get what you need. Downloadable fact sheet, doctor visit checklist, Severe Eosinophilic Asthma (S.E.A.) information and guide to managing symptoms of S.E.A. accompanied by videos with leading asthma doctors helps you get a step up on your life with asthma.
- E-Asthma Bunches of information on how to check if your asthma could be Eosinophilic asthma (a type of severe asthma) which can increase inflammation in the lungs. The site's "What? Who? How?" approach consists of a short video describing how eosinophils effect the lungs, what and who you should do and see for a diagnosis, a doctor's checklist and lung questionnaire to better the understanding of your diagnosis with your doctor.
|Kortney of AllergyGirlEats|
Then We Hit the Pavement Yes, we all went to Congress and spoke to our state's representatives. I have never been so excited, afraid, tired, exhilarated and proud all in the same day. The topics that all of us fought to urge Congress to support and pass included access to care, step therapy, disease management, medication access, telemedicine, affordable medications and treatments, asthma and allergy program funding, health equality, food product labeling, cross-contact and USP797. Amidst the maze of Washington, D.C. were hopeful hearts, voices that were sharing concern and personal stories of themselves and others to let Congress understand how important our causes are to us and everyone else in our community and beyond. I proudly sported my red sneakers in support of the Debbs family which also proves that you can be a voice even without saying a word.
I want to thank the Allergy & Asthma Network for including me at this wonderful experience with so many other amazing people in addition to their sponsors that made this possible. This little blogger girl from North Carolina felt amazed at all of the people who supported each other but also I amazed myself by being a part of all of this when I never would have seen myself doing this. I am filled with even more hope than before, I have gained new food allergy family members and most of all, I find myself asking "What do I do now?" If I had an answer, that would be the end of my story and I refuse to stop where I am.
|Allie Bahn, Gary Fitgerald & Marcela Gieminiani|
Summit attendees included Allie Bahn, Emma Amoscato, Kortney Kwong Hing, Henry Ehrlich, Jennifer Roberge, Kerri MacKay, Erin Malawar and Andrea Jensen.